Who are we?

We are a group of around 10 people with intellectual disabilities.
We meet for an afternoon every month.
The group started in 2016.
We are based at GENERATE in Wandsworth, South London.

What do we do?

We talk about death, dying and bereavement.
Irene Tuffrey-Wijne and Jo Giles help us to talk.

We have shared our experiences and our ideas.
Sometimes we use pictures and stories to help us talk about dying.
We support each other.

We have helped Irene with her research projects.
We have helped her with the Talking About Dying Study.

We have given hints and tips to NHS England.
They put our words in a national guide.

Some of our hints and tips in the NHS England document


We also have fun!


Would you like to find out more?
Would you like to join the group?

Get in touch with Irene!