Growing Older, Living Well: End of life care planning and people with learning disabilities from BILD communications on Vimeo.

10 June 2020: What does good end of life care planning look like? What should you talk about, how, and when should you talk about it? Big questions. It’s hard enough for any of us to plan for our time of declining health and dying. Much harder, still, for people with learning disabilities. And much, much harder still at this time of Covid-19.

There is a danger that we talk about it at an unhelpful time or in an unhelpful way. This danger is greatest if there is a tick-box approach to “end of life care planning” (or, as it is often called, “advance care planning”), where the focus is on completed paperwork rather than on communication.

In this webinar, Professor Irene Tuffrey-Wijne talks about what end of life care planning is (and what it isn’t), and talks through her top tips on how to approach this with people with learning disabilities. She will also discuss some of the particular challenges we face now, during Covid-19, in relation to end of life care planning.


Growing Older, Living Well: Coping with illness, dying, death, bereavement and learning disability during the Covid-19 outbreak from BILD communications on Vimeo.

29 April 2020: Irene Tuffrey-Wijne has spent the past two decades researching the needs of people with learning disabilities who reach the end of life, and those who are bereaved. What are the challenges and difficulties for families, support staff, professionals and service providers? Crucially, what do people with learning disabilities themselves think about all this?

One of the big questions everyone struggled with was TALKING ABOUT DYING. Should you? Could you? How? Who? When? Much of her research over the past decade has focused on these questions.

In this webinar, Irene draws on this research to think and talk about the impact of coronavirus (Covid-19) on people with learning disabilities and those that support them.