Curriculum Vitae

Academic and professional qualifications

PhD, Palliative Care for People with Intellectual Disabilities, Maastricht University, Netherlands
BSc, Nursing Studies Palliative Care (First Class Honours), King’s College London, UK
PgDip, Diploma Higher Education in Nursing Studies Palliative Care (Distinction), King’s College London, UK
HBO-V (Registered Nurse) Gijsbreght Academie (College of Nursing), Amsterdam, Netherlands

Professional experience

2018 Professor (Kingston University & St George’s, University of London)
2014 – 2018 Associate Professor (Kingston University & St George’s, University of London)
2008 – present Honorary Senior Research Fellow/Associate Professor/Professor (Maastricht University, Gouvernor Kremers Centre, Netherlands)
2013 – 2014 Senior Research Fellow (Kingston University & St George’s, University of London)
2010 – 2013 Senior Research Fellow (St George’s University of London)
2004 – 2010 Research Fellow (St George’s, University of London)
2001 – 2004 Research and Development Nurse (St George’s, University of London)
1998 – 2001 Palliative Care Nurse Specialist (Trinity Hospice, London)
1996 – 1998 Ward Sister (Trinity Hospice, London)
1993 – 1996 Staff Nurse (Trinity Hospice, London)
1988 – 1993 Residential Care Home Manager (L’Arche Community for People with Intellectual Disabilities, London)
1987 – 1988 Various agency nursing posts (Netherlands)
1985 – 1987 Residential Care Support Worker (L’Arche Community, London)

Professional registration and membership

1991 Registered Nurse (General Nursing), Nursing and Midwifery Council (PIN: 91J0032C)
1993 Registered Nurse (Learning Disability Nursing), Nursing and Midwifery Council (PIN: 91J0032C)
1981-2015: Nursing Register, the Netherlands (now expired)
Member, European Association of Palliative Care
Fellow, European Academy of Nursing Science
Member / Trustee, Palliative Care for People with Learning Disabilities Network

Awards

National Diversity Awards 2021 (Shortlisted for work with the PCPLD Network. Category: Community Organisation Award for Disability)
University Alliance Award 2021 (Joint Winners, Innovation Award Category)
Palliative Care Nursing Pioneer 2020St Christopher’s Hospice
Postdoctoral Research Award 2017, European Association of Palliative Care
RCN Research Society Akinsanya Award 2009 (Special Commendation) For innovation in doctoral nursing research
Best Poster Award, 9th Conference for Clinical Ethic Committees, Oxford, 2009
Best Poster Prize, European Congress of the International Association for the Scientific Study of Intellectual Disabilities, 2006
First Prize, Macmillan Cancer Relief/International Journal of Palliative Nursing Awards 2005, ‘Educationalist of the year’

Research grants and funding

2021 – 2024 NHS England LeDeR programme
2020 – 2023 
NIHR HS&DR
2016 – 2018 Baily Thomas Charitable Trust
2015 – 2016 South West London Academic, Health and Social Care System
2011 – 2013 NIHR-SDO
2009 – 2011 Macmillan Cancer Support
2009 – 2011 BUPA Foundation
2008 – 2009 Wellcome Trust Value in People
2004 – 2006 Cancer Research UK
2005 – 2005 SW London and St George’s NHS Mental Health Trust
2005 – 2005 Cancer Research UK
2004 – 2004 Awards for All

Editorial board membership

Journal of Applied Research in Intellectual Disabilities
British Journal of Learning Disabilities

Trustee / Charities

Palliative Care for People with Learning Disabilities (PCPLD) Network
Books Beyond Words