Growing Older, Planning Ahead (2020-2023)

Improving the support for older people with learning disabilities and behaviours that challenge, family and professional carers, and end of life care planning for carers

Easy-read information

This project is led by Oxford University and Open University, and funded by the National Institute for Health Research (NIHR 129491).

Kingston & St George’s University will host Work Package 4, led by Professor Irene Tuffrey-Wijne:

Work Package 4 – Investigate, co-produce and test a family based support programme to help families living with older people with learning disabilities to prepare for parental loss, transitions in care, and end-of-life care for carers.

The Project runs from September 2020 to February 2023.


Families and people with learning disabilities helped us to co-design a set of conversation cards, to help them plan ahead for the future. We are currently recruiting families who would like to help us test a set of conversation cards. Watch this video for more information: