Growing Older, Planning Ahead

Improving the support for older people with learning disabilities and behaviours that challenge, family and professional carers, and end of life care planning for carers

This project is led by Oxford University and Open University, and funded by the National Institute for Health Research (NIHR 129491).

Kingston & St George’s University will host Work Package 4, led by Professor Irene Tuffrey-Wijne:

Work Package 4 – Investigate, co-produce and test a family based support programme to help families living with older people with learning disabilities to prepare for parental loss, transitions in care, and end-of-life care for carers.

The Project runs from September 2020 to February 2023.

  • Further details about the entire project can be found on the Growing Older, Planning Ahead Project Website
  • Further details about Work Package 4: here
  • Easy-read information about Work Package 4: here

We are currently looking for parents and siblings of older people with learning disabilities, to talk to us about their experiences, worries and hopes. If you are interested in finding out more, please contact Becky Anderson by emailing or telephone 07942 265707.

This short film tells you more about it: