LeDeR Programme

My team at Kingston & St George’s University is part of a new Consortium led by King’s College London. We have been commissioned by NHS England to support the National Learning Disability and Autism Programme to reduce inequalities and premature mortality among learning disabled and autistic people. This involved analysing the data of the Learning Disability Mortality Review programme (LeDeR), which reviews deaths of people with learning disabilities, looks at their life and the health and social care services they received.

The Consortium will look at this information to find areas of learning, opportunities to improve, and examples of excellent practice. This information will then be used to improve services for people living with a learning disability, with an annual report produced for LeDeR from next year. The work will start in the autumn of 2021, for a period of five years.

At my end, we will use our skills in co-research and co-production to lead the newly convened Co-Production Partnership, working the Foundation of People with Learning Disabilities, the Estia Centre and Pathways Associates.

At the heart of the partnership is an expert core group of six people with learning disabilities whose role includes identifying areas that need further attention, harnessing the views of other people with learning disabilities on pertinent issues, contributing to the identification of recommendations, and communicating the LeDeR findings to a wider audience including people with learning disabilities.

It is important for people with learning disabilities to be involved in the LeDeR programme. They are at the heart of all this. They need to be listend to, not just be a number but to be involved and taken seriously. We will be able to help everyone understand how things can be improved.

Richard Keagan-Bull
Research Assistant, Kingston & St George’s University
Core Member of Consortium Team