Irene Tuffrey-Wijne

Professor of Intellectual Disability and Palliative Care

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    • Biography
    • Curriculum Vitae
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    • Academic articles
    • Books
    • Guidelines and reports
    • Nederlands (Dutch)
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    • Growing Older, Planning Ahead
    • Research training course for people with learning disabilities
    • The Victoria & Stuart Project
    • Yellow Tulip Group
    • GRASSroots
    • Talking About Dying Survey
    • Staying Alive and Well (LeDeR Programme)
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Guidelines and reports

NHS England & PCPLD Network (2017): Delivering high quality end of life care for people who have a learning disability: Resources and tips for commissioners, service providers and health and social care staff.

Tuffrey-Wijne I, McLaughlin D (2015) Consensus norms for palliative care of people with intellectual disabilities in Europe: EAPC White Paper. European Association of Palliative Care.

Bekkema N, Tuffrey-Wijne I, Wagemans A, Hertogh C, Francke A, De Veer A (2015) Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities. Utrecht: NIVEL.

Watchman K, Tuffrey-Wijne I, Quinn S (2015) Jenny’s Diary: a resource to support conversations about dementia with people who have a learning disability. London: Alzheimer Society.

Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A. (2011) Supporting people with learning disabilities who are affected by a relative or friend with cancer: Final Report. London: Macmillan Cancer Support.

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Irene’s recent blog posts

  • How easy is Easy Read? 18th July 2022
  • Jargon busting 20th March 2022

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Irene’s tweets

  • It’s very hard to research end-of-life communication. What is success? The patient dies; the family is bereft. Yet… https://t.co/ZnXwgxkNN7yesterday
  • Always good to find new accessible ways to collect data. Quoting my colleague Leon: “I didn’t know you can do resea… https://t.co/fIzjtlHYuh5 days ago
  • "We can’t just keep talking about our ‘shock’ and ‘outrage’. There needs to be real accountability in the system. T… https://t.co/IOcFGzicDC6 days ago
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