Irene Tuffrey-Wijne

Professor of Intellectual Disability and Palliative Care

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    • Biography
    • Curriculum Vitae
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    • Academic articles
    • Books
    • Guidelines and reports
    • Nederlands (Dutch)
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    • Growing Older, Planning Ahead
    • Research training course for people with intellectual disabilities
    • GRASSroots
    • PEPIC19 Survey
    • Talking About Dying Survey
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Guidelines and reports

NHS England & PCPLD Network (2017): Delivering high quality end of life care for people who have a learning disability: Resources and tips for commissioners, service providers and health and social care staff.

Tuffrey-Wijne I, McLaughlin D (2015) Consensus norms for palliative care of people with intellectual disabilities in Europe: EAPC White Paper. European Association of Palliative Care.

Bekkema N, Tuffrey-Wijne I, Wagemans A, Hertogh C, Francke A, De Veer A (2015) Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities. Utrecht: NIVEL.

Watchman K, Tuffrey-Wijne I, Quinn S (2015) Jenny’s Diary: a resource to support conversations about dementia with people who have a learning disability. London: Alzheimer Society.

Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A. (2011) Supporting people with learning disabilities who are affected by a relative or friend with cancer: Final Report. London: Macmillan Cancer Support.

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Irene’s recent blog posts

  • People with learning disabilities six times more likely to die of Covid-19… The numbers are shocking 13th November 2020
  • The brave new world of webinars, podcasts and Zoom 20th September 2020

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Irene’s tweets

  • RT @gemma_allen1: @Helen_Charters @PCPLDnetwork @BaronessHollins @TuffreyWijne @JedJerwood Hi Helen. Resources available, including previou…yesterday
  • We've keeping this online international survey open 1 more month. It will really, REALLY help to have as many respo… https://t.co/uixPUdOs6xyesterday
  • RT @C_Circles: @TuffreyWijne @neilmcrowther Hi Irene. We want everyone who wants a Circle to have one. Our approach is to spread them by le…2 days ago
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