Irene Tuffrey-Wijne

Professor of Intellectual Disability and Palliative Care

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    • Biography
    • Curriculum Vitae
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    • Academic articles
    • Books
    • Guidelines and reports
    • Nederlands (Dutch)
  • Projects
    • Growing Older, Planning Ahead Cards
    • Researchers with learning disabilities
    • The Victoria & Stuart Project (2022-2024)
    • Yellow Tulip Group
    • GRASSroots
    • Talking About Dying Survey (2017-2018)
    • Staying Alive and Well (LeDeR Programme) (2021 – ongoing)
    • EAPC Reference Group on Intellectual Disability (2012 – ongoing)
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Guidelines and reports

NHS England & PCPLD Network (2017): Delivering high quality end of life care for people who have a learning disability: Resources and tips for commissioners, service providers and health and social care staff.

Tuffrey-Wijne I, McLaughlin D (2015) Consensus norms for palliative care of people with intellectual disabilities in Europe: EAPC White Paper. European Association of Palliative Care.

Bekkema N, Tuffrey-Wijne I, Wagemans A, Hertogh C, Francke A, De Veer A (2015) Decision-making about the best place of palliative care for people with intellectual disabilities: a guide for care staff and healthcare professionals providing palliative care for people with intellectual disabilities. Utrecht: NIVEL.

Watchman K, Tuffrey-Wijne I, Quinn S (2015) Jenny’s Diary: a resource to support conversations about dementia with people who have a learning disability. London: Alzheimer Society.

Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A. (2011) Supporting people with learning disabilities who are affected by a relative or friend with cancer: Final Report. London: Macmillan Cancer Support.

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Irene’s recent blog posts

  • How easy is Easy Read? 18th July 2022
  • Jargon busting 20th March 2022

Irene’s tweets

  • Thinking of John moves me still, 17 years after he died. One of my first research participants. Writing this blog b… https://t.co/KU5ObUvu3q10 hours ago
  • Join me & @RKeaganBull hosting the next webinar on 18 April 12.00-12.45 https://t.co/i1jH6aqEJ8yesterday
  • Great threadThese are our thoughts too. I’m often asked “is there an easy-read End of life plan?” Always felt unco… https://t.co/sxpvoVBAvnyesterday
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