Staying Alive and Well (LeDeR Programme) (2021 – ongoing)

Watch this introduction to the 2022 LeDeR report, by the Staying Alive and Well Group

CLICK HERE for the 2022 LeDeR reports (Published November 2023)

Logo designed by Darren Barnes

CLICK HERE for Easy Read info about Staying Alive and Well.

What is the Staying Alive and Well group?

My team at Kingston & St George’s University is part of a Consortium led by King’s College London. We are commissioned by NHS England to support the National Learning Disability and Autism Programme to reduce inequalities and premature mortality among learning disabled and autistic people. This involved analysing the data of the Learning from Deaths of People with a Learning Disability (LeDeR) programme, which reviews deaths of people with learning disabilities, looks at their life and the health and social care services they received.

At my end, we use our skills in co-research and co-production to lead the Co-Production Partnership, working the Foundation of People with Learning Disabilities, the Estia Centre and Pathways Associates.

At the heart of the partnership is an expert core group of seven people with learning disabilities (and people who support them), who meet together on Zoom once a month. Their role includes identifying areas that need further attention, harnessing the views of other people with learning disabilities on pertinent issues, contributing to the identification of recommendations, and communicating the LeDeR findings to a wider audience including people with learning disabilities.

Accessible versions of the LeDeR reports

This is our biggest job. In 2022, we published our first accessible version of the Annual LeDeR Report. We produced a video. Read here how we decided on this format.

CLICK HERE for links to all the accessible versions of the reports (as well as the full reports)

Here are two videos the group produced in 2023:

How LeDeR works
Accessible version of the 2022 Annual LeDeR report

Art competition: design our logo

At the start of 2022, we held an art competition for people with learning disabilities and autistic people across England. We received lots of wonderful entries. The winning logo (at the top of this page) was by Darren Barnes. Here are some of the runners-up!

Peter Allum
Tonbridge & Tonbridge Wells Day Services
Louise Darlington
Stuart Hand