{"id":83,"date":"2017-10-28T11:33:40","date_gmt":"2017-10-28T10:33:40","guid":{"rendered":"http:\/\/www.tuffrey-wijne.com\/?page_id=83"},"modified":"2026-03-28T19:00:13","modified_gmt":"2026-03-28T19:00:13","slug":"academic-articles","status":"publish","type":"page","link":"https:\/\/www.tuffrey-wijne.com\/?page_id=83","title":{"rendered":"Academic articles"},"content":{"rendered":"\n

Bruun A, Cresswell A, Jeffrey D, Jordan L, Keagan-Bull R, Giles J, Swindells S, Wilding M, Payne N, Allen G, Hughes R, Tilley E, Gibson S, Anderson-Kittow R, Tuffrey-Wijne I (2025) Getting it out there: Reflections on the process and impact of public engagement activities in a study on end-of-life care planning with people with intellectual disabilities<\/a>. <\/strong>Health Expectations <\/em>29: e70653. https:\/\/doi.org\/10.1111\/hex.70653<\/p>\n\n\n\n

Tyrer, F; Miksza, ; Zaccardi, F; Gillies, C; Khunti, K; Borgstrom, E; Tilley, E; Tuffrey-Wijne, I (in press) Palliative and end-of-life care (PEOLC) in people with and without intellectual disabilities in primary care: identification, survival time and healthcare utilization.<\/strong> Family Practice<\/em> <\/p>\n\n\n\n

Bruun A, Cresswell A, Jeffrey D, Jordan L, Keagan-Bull R, Giles J, Gardener F, Wilding M, Payne N, Swindells S, Gibson S, Anderson-Kittow R, Tuffrey-Wijne I (2025) Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: An exploration of implementation outcomes within intellectual disability social care services. <\/a><\/strong>Journal of Intellectual Disabilities <\/em>0(0). https:\/\/doi.org\/10.1177\/17446295251367687<\/p>\n\n\n\n

Redmore N, Wallace L, Tuffrey-Wijne I (2025) Exploring England’s palliative and end\u2010of\u2010life care systems for people with learning disabilities: The perspectives of senior health and social care professionals and commissioners.<\/a><\/strong> British Journal of Learning Disabilities<\/em>\u00a00:\u00a01\u20138.\u00a0https:\/\/doi.org\/10.1111\/bld.70031<\/p>\n\n\n\n

Tuffrey-Wijne I, Tilley E, Tyrer F, Islam Z, Jordan J, Glover G, Wallace L, Giles J, Keagan-Bull R, Cresswell A, Anderson-Kittow R (2025) <\/strong><\/a>Developing service models for adult palliative and end of life care for people with a learning disability (The DAPPLE Project): protocol for a mixed-method study.<\/a><\/strong> <\/strong><\/a>BMJ Open <\/em>2025;15:e106752. doi: 10.1136\/bmjopen-2025-106752<\/p>\n\n\n\n

Tuffrey-Wijne I, Bruun A, Tilley E, Giles J, Gibson S, Cresswell A, Keagan-Bull R, Jordan L, Allen G, Swindells S, Payne N, Hughes R, Anderson-Kittow R (2025) Co-designing a toolkit of approaches and resources for end-of-life care planning with people with intellectual disabilities within adult social care settings: a multi-phase study<\/a><\/strong>. Journal of Applied Research in Intellectual Disabilities <\/em>38:e70019. https:\/\/doi.org\/10.1111\/jar.70019<\/p>\n\n\n\n

Tilley E, Rouse L, Tuffrey-Wijne I, Anderson-Kittow R (2024) Reflections on an evidence review process to inform the co-design of a toolkit for supporting end-of-life care planning with people with intellectual disabilities<\/a><\/strong>. Health Expectations <\/em>27:e70062 https:\/\/doi.org\/10.1111\/hex.70062<\/p>\n\n\n\n

Bruun A, Cresswell A, Jeffrey D, Jordan L, Keagan-Bull R, Giles J, Swindells S, Wilding M, Payne N, Gibson S, Anderson-Kittow R, Tuffrey-Wijne I (2024) The All Together Group: Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities in Social Care Settings<\/a>.<\/strong> Health Expectations<\/em> 27(4). https:\/\/doi.org\/10.1111\/hex.14174<\/p>\n\n\n\n

Bruun A, Jordan L, Giles J, Hughes R, Anderson-Kittow R, Tuffrey-Wijne I (2025). Don\u2019t assume, ask! A focus group study on end-of-life care planning with people with intellectual disabilities from minoritised ethnic groups<\/a><\/strong>. BMC Palliative Care<\/em> 24(1), 13. https:\/\/doi.org\/10.1186\/s12904-025-01646-0

Ryan S, Wallace L, Tilley E, Tuffrey-Wijne I, Mikulak M, Anderson R, Vaid A, Bebbington P, Keagan- Bull R, Morrissey E, Martin A (2024) Improving support and planning ahead for older people with learning disabilities and family carers: a mixed-methods study<\/strong><\/a>. Full report. Health and Social Care Delivery Research <\/em>12 (16) https:\/\/doi.org\/10.3310\/MTHW2644<\/a><\/p>\n\n\n\n

Bruun A, Cresswell A, Jordan L, Keagan-Bull R, Giles J, Gibson S, Anderson-Kittow R, Tuffrey-Wijne I (2024) What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers, and professionals on end-of-life care planning: a focus group study<\/strong><\/a>. Palliative Medicine <\/em>38 (6), 669-678 https:\/\/doi.org\/10.1177\/02692163241250218<\/p>\n\n\n\n

Tuffrey-Wijne I (2024) Assisted dying in people with learning disabilities<\/strong>.<\/a> Learning Disability Practice <\/em>27 (1), 18-19<\/p>\n\n\n\n

Tuffrey-Wijne I (2024) End-of-life care planning (Editorial)<\/strong><\/a>. International Journal of Palliative Nursing <\/em>30 (1), 3<\/p>\n\n\n\n

Ding R, Keagan-Bull R, Tuffrey-Wijne I (2024) It is up to healthcare professionals to talk to us in a way that we can understand: informed consent processes in people with an intellectual disability<\/strong><\/a> (Editorial) BMJ Quality & Safety <\/em>doi:10.1136\/bmjqs-2023-016830<\/p>\n\n\n\n

Anderson-Kittow R, Keagan-Bull R, Giles J, Tuffrey-Wijne I (2024) Co\u2010designing resources to support older people with intellectual disabilities and their families plan for parental death and transitions in care<\/strong><\/a> Health Expectations <\/em>DOI: 10.1111\/hex.14000<\/p>\n\n\n\n

Tuffrey-Wijne I, Curfs L, Hollins S, Finlay I (2023) Euthanasia and physician-assisted suicide in people with intellectual disabilities and\/or autism spectrum disorders: an investigation of 39 Dutch case reports (2012-2021).<\/a> <\/strong>BJPsych Open<\/p>\n\n\n\n

Harper L, McAnelly S, Walshe I, Ooms A, Tuffrey-Wijne I (2023) Behavioural sleep problems in children and adults with intellectual disabilities: an integrative literature review<\/strong><\/a>. Journal of Applied Research in Intellectual Disabilities<\/em><\/p>\n\n\n\n

Noorland H, Korfage I, van der Sar L, Felet F, Tuffrey-Wijne I, van der Heide A, Echteld M (2023) Degree of autonomy in making independent choices by frail older people with intellectual disabilities in a care home: A descriptive ethnographic study<\/strong>.<\/a> Journal of Applied Research in Intellectual Disabilities<\/p>\n\n\n\n

Anderson R, Keagan-Bull R, Giles J, Tuffrey-Wijne I (2022) \u201cMy name on the door by the Professor’s name\u201d: The process of recruiting a researcher with a learning disability at a UK university.<\/strong> <\/a>British Journal of Learning Disabilities<\/em><\/p>\n\n\n\n

Oulton K, Wray J, Kenten C, Russell J, Carr L, Hassiotis A, Jewitt C, Kelly P, Kerry S, Tuffrey-Wijne I, Whiting M, Gibson F (2022) Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study<\/strong><\/a>. <\/strong>Health and Social Care Delivery Research<\/em><\/p>\n\n\n\n

Moore C, Pan C, Roseman K, Stephens M, Bien-Aime C, Morgan A, Ross W, Castillo M, Palathra B, Jones C, Ailey S, Tuffrey-Wijne I, Smeltzer S, Tobias J (2022) Top ten tips palliative care clinicians should know about navigating the needs of adults with intellectual disabilities.<\/strong><\/a> Journal of Palliative Medicine<\/em><\/p>\n\n\n\n

Noorlandt H, Korfage I, Tuffrey-Wijne I, Festen D, Vrijmoeth C, van der Heide A, Echteld M (2021) Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase<\/a>.<\/strong> Journal of Applied Research in Intellectual Disabilities <\/em><\/p>\n\n\n\n

Harper L, Ooms A, Tuffrey-Wijne I (2021) The impact of nutrition on sleep in people with an intellectual disability: an integrative literature review<\/a>.<\/strong> Journal of Applied Research in Intellectual Disabilities<\/em><\/p>\n\n\n\n

Noorlandt H, Echteld M, Tuffrey-Wijne I, Festen D, Vrijmoeth C, van der Heide A, Korfage I (2020) Shared decision-making with people with intellectual disabilities in the last phase of life: A scoping review.<\/a> <\/strong>Journal of Intellectual Disability Research<\/em><\/p>\n\n\n\n

Adam E, Sleeman K, Brearley S, Hunt K, Tuffrey-Wijne I (2020) The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review<\/strong>. <\/a>Palliative Medicine <\/em>(17 June 2020)<\/p>\n\n\n\n

Lam C, Bernal J, Finlayson J, Todd S, Taggart L, Boaz A, Tuffrey-Wijne I (2020) Maximising engagement and participation of intellectual disability (ID) staff in research: insights from conducting a UK-wide survey<\/strong><\/a> Journal of Intellectual Disabilities <\/em>(12 May 2020)<\/p>\n\n\n\n

Tuffrey-Wijne I, Lam C, Marsden D, et al. (2020) Developing a training course to teach research skills to people with learning disabilities: \u201cIt gives us a voice. We CAN be researchers!\u201d<\/strong><\/a> British Journal of Learning Disabilities <\/em>(22 May 2020)<\/p>\n\n\n\n

Tuffrey-Wijne I, Finlayson J, Bernal J, Taggart L, Lam C, Todd S (2020) Communicating about death and dying with adults with intellectual disabilities (ID) who are terminally ill or bereaved: a UK-wide survey of ID support staff<\/strong><\/a> Journal of Applied Research in Intellectual Disabilities <\/em>(18 Feb 2020)<\/p>\n\n\n\n

Tuffrey-Wijne I, Curfs L, Finlay I, Hollins S. (2019) \u201cBecause of his intellectual disability, he couldn\u2019t cope.\u201d Is euthanasia the answer?<\/strong> <\/a>Journal of Policy and Practice in Intellectual Disabilities <\/em>16 (2), 113-116<\/p>\n\n\n\n

Oulton K, Wray J, Hassiotis A, Kenten C, Russell J, Tuffrey-Wijne I, Whiting M, Gibsen F. (2019) Learning disability nurse provision in children\u2019s hospitals: hospital staff perceptions of whether it makes a difference.<\/strong><\/a> BMC Pediatrics <\/em>19:192<\/p>\n\n\n\n

Kenten C, Wray J, Gibson F, Russell J, Tuffrey-Wijne I, Oulton K (2019) To flag or not to flag: identification of children and young people with learning disabilities in English hospitals.<\/strong> <\/a>Journal of Applied Research in Intellectual Disabilities <\/em>32 (5), 1176-1183<\/p>\n\n\n\n

Tuffrey-Wijne I, Curfs L, Finlay I, Hollins S (2018) Euthanasia and assisted suicide for people with an intellectual disability and\/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012-2016).<\/strong> <\/a>BMC Medical Ethics 19:17<\/p>\n\n\n\n

Tuffrey-Wijne I, Rose T (2017) Investigating the factors that affect the communication of death-related bad news to people with intellectual disabilities by staff in residential and supported living services: an interview study<\/a>.<\/strong> Journal of Intellectual Disability Research <\/em>61 (1), 727-736<\/p>\n\n\n\n

Tuffrey-Wijne I, Rose T, Grant R, Wijne A (2017) Communicating about death and dying: developing training for staff working in services for people with intellectual disabilities<\/a>.<\/strong> Journal of Applied Research in Intellectual Disabilities<\/em> 30 (6), 1099-1110<\/p>\n\n\n\n

Wagemans A, van Schrojenstein Lantman-de Valk H, Proot I, Bressers A, Metsemakers J, Groot M, Tuffrey-Wijne I, Curfs L (2016) Do-Not-Attempt-Resuscitation orders for people with intellectual disabilities: dilemmas and uncertainties for ID physicians and trainees: The importance of the deliberation process.<\/a> <\/strong>Journal of Intellectual Disability Research <\/em>61 (3), 245-254<\/p>\n\n\n\n

Oulton K, Wray J, Carr L, Hassiotis A, Jewitt C, Kerry S, Tuffrey-Wijne I, Gibson F (2016) Pay More Attention: a national mixed methods study to identify the barriers and facilitators to ensuring equal access to high-quality hospital care and services for children and young people with and without learning disabilities and their families.<\/strong><\/a> BMJ Open<\/em> 6(12):e012333. doi: 10.1136\/bmjopen-2016-012333.<\/p>\n\n\n\n

Tuffrey-Wijne I (2016) Palliative care for people with intellectual disabilities: the EAPC White Paper in a nutshell.<\/strong><\/a> European Journal of Palliative Care <\/em>23(1), 45-47.<\/p>\n\n\n\n

Tuffrey-Wijne I, Wicki M, Heslop P, McCarron M, Todd S, Oliver D, De Veer A, Ahlstr\u00f6m G, Sch\u00e4per S, Hynes G, O\u2019Farrell J, Adler J, Riese F, Curfs L (2016) Establishing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique. <\/strong><\/a>BMC Palliative Care <\/em>15:36. DOI 10.1186\/s12904-016-0108-5<\/p>\n\n\n\n

Tuffrey-Wijne I, Abraham E, Giatras N, Goulding L, Gillard S, White S, Edwards C, Hollins S (2016) Role confusion as a barrier to effective carer involvement for people with intellectual disabilities in acute hospitals: findings from a mixed-method study.<\/strong><\/a> Journal of Advanced Nursing <\/em>72(11), 2907-2922<\/p>\n\n\n\n

Tuffrey-Wijne I, McLaughlin D (2015) Consensus norms for palliative care of people with intellectual disabilities in Europe: EAPC White Paper. <\/strong><\/a>European Association of Palliative Care<\/p>\n\n\n\n

Tuffrey-Wijne I, Watchman K (2015) Breaking bad news to people with learning disabilities and dementia<\/a>.<\/strong> Learning Disability Practice 18 (7), 16-23<\/p>\n\n\n\n

Tuffrey-Wijne I, McLaughlin D, Curfs L, Dusart A, Hoenger C, McEnhill L, Read S, Ryan K, Satg\u00e9 D, Stra\u03b2er B, Westerg\u00e5rd B, Oliver D (2015). Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods: A White Paper from the European Association of Palliative Care (EAPC).<\/a> <\/strong>Palliative Medicine 30 (5), 446-455<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2015) Cancer and intellectual disability. In Wyatt, D. and Hulbert-Williams, N. (eds) Cancer and cancer care.<\/strong> <\/a>London: Sage Publications. Chapter 10, 143-148<\/p>\n\n\n\n

Wagemans A, van Schrojenstein Lantman-de Valk H, Proot I, Metsemakers J, Tuffrey-Wijne I, Curfs L (2015) End-of-life decision-making for people with intellectual disability from the perspective of nurses. <\/strong><\/a>Journal of Policy and Practice in Intellectual Disabilities <\/em>12 (4), 294-302<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hollins, S. (2014) Improving hospital care for patients with intellectual disabilities <\/strong><\/a>(Editorial). British Journal of Hospital Medicine 75 (6), 304-305<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hollins, S. (2014) Preventing \u2018deaths by indifference\u2019: identification of reasonable adjustments is key<\/a> <\/strong>(Editorial). British Journal of Psychiatry 205, 86-87<\/p>\n\n\n\n

Tuffrey-Wijne, I., Goulding, L., Gordon, V., Giatras, N., Abraham, L., White, S., Edwards, C., Gillard, S., Hollins, S. (2014) The challenges in monitoring and preventing patient safety incidents for people with intellectual disabilities in NHS acute hospitals: evidence from a mixed-methods study. <\/strong><\/a>BMC Health Services Research 14:432 doi:10.1186\/1472-6963-14-432<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2014) Palliative care to people with intellectual disabilities: developments in the United Kingdom and beyond. In: Bruhn, R., Stra\u03b2er, B. (eds) Palliative Care fu\u0308r Menschen mit geistiger Behinderung: Interdisziplin\u00e4re Perspektiven fu\u0308r die Begleitung am Lebensende.<\/strong><\/a> Stuttgart: Kohlhammer. Chapter 7.1, 264-268<\/p>\n\n\n\n

Tuffrey-Wijne, I., Goulding, L., Giatras, N., Abraham, L., Gillard, S., White, S., Edwards, C., Hollins, S. (2014) The challenges to and enablers of providing reasonably adjusted health services to people with intellectual disabilities in acute hospitals: evidence from a mixed-methods study.<\/strong><\/a> BMJ Open 2014;4:e004606 doi:10.1136\/bmjopen-2013-004606<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2013) A new model for breaking bad news to people with intellectual disabilities<\/a>. <\/strong>Palliative Medicine 27 (1), 5-12<\/p>\n\n\n\n

Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A., Manners, P., Bernal, J. (2013) Developing guidelines for disclosure or non-disclosure of bad news to people with intellectual disabilities<\/a>.<\/strong> Journal of Applied Research in Intellectual Disabilities 26 (3), 231-242<\/p>\n\n\n\n

Tuffrey-Wijne I, Giatras N, Goulding L, Abraham E, Fenwick L, Edwards C, Hollins S (2013) Identifying the factors affecting the implementation of strategies to promote a safer environment for patients with learning disabilities in NHS hospitals: a mixed-methods study.<\/strong><\/a> Health Services Delivery Research 1(13). DOI: 10.3310\/hsdr01130<\/p>\n\n\n\n

Hollins,S., Tuffrey-Wijne,I. (2013) Meeting the needs of patients with learning disabilities<\/a> <\/strong>(Editorial). British Medical Journal 346:f3421(Published 29 May 2013)<\/p>\n\n\n\n

Tuffrey-Wijne,I. (2013) Palliative Care for People with Learning Disabilities Network.<\/strong><\/a> European Journal of Palliative Care 20 (1), 48-50.<\/p>\n\n\n\n

Wagemans,A., van Schrojenstein Lantman-de Valk, H., Proot, I., Metsemakers,J., Tuffrey-Wijne, I., Curfs, L. (2013) End-of-life decisions for people with intellectual disabilities, an interview study with patient representatives<\/strong>.<\/a> Palliative Medicine 27 (8), 765-71<\/p>\n\n\n\n

Tuffrey-Wijne, I., Giatras, N., Butler, G., Cresswell, A. (2012) People with intellectual disabilities who are affected by a relative or friend with cancer: a qualitative study exploring experiences and support needs.<\/a> <\/strong>European Journal of Oncology Nursing 16 (5), 512-519.<\/p>\n\n\n\n

Butler, G., Cresswell, A., Giatras, N., Tuffrey-Wijne, I. (2012) Doing it together: co-facilitating focus groups with people with learning disabilities.<\/strong><\/a> British Journal of Learning Disabilities 40 (2), 134-142<\/p>\n\n\n\n

Tuffrey-Wijne, I., Wagemans, A., Curfs, L. (2012) End of life care for patients with intellectual disabilities. In: A public health perspective on end of life care.<\/strong><\/a> Edited by Cohen D, Deliens L. Oxford: Oxford University Press<\/p>\n\n\n\n

Cross, H., Cameron, M., Marsh, S., Tuffrey-Wijne, I.: (2012) Practical approaches toward improving end-of-life care for people with intellectual disabilities: effectiveness and sustainability.<\/a> <\/strong>Journal of Palliative Medicine 15 (3), 322-326<\/p>\n\n\n\n

Wagemans, A., van Schrojenstein Lantman-de Valk, H., Proot, I., Metsemakers, J., Tuffrey-Wijne, I., Curfs, L. (2012) The factors affecting end-of-life decision-making by physicians of patients with intellectual disabilities in the Netherlands: a qualitative study.<\/a> <\/strong>Journal of Intellectual Disability Research 57 (4), 380-389.<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2011) People with intellectual disabilities. In Death, dying and social differences. <\/a><\/strong>2nd edition. Edited by Oliviere D, Monroe B, Payne S. Oxford: Oxford University Press<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J., Hollins, S. (2010) Disclosure and understanding of cancer diagnosis and prognosis for people with intellectual disabilities: findings from an ethnographic study<\/strong>.<\/a> European Journal of Oncology Nursing 14 (3), 224-230<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2010) Do you provide equal healthcare to people with learning disabilities?<\/strong><\/a> Nursing Times 106 (31), 8<\/p>\n\n\n\n

Tuffrey-Wijne, I., Butler, G. (2010) Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis.<\/strong><\/a> Health Expectations 13 (2), 174-184<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J., Hubert, J., Butler, G., Hollins, S. (2010) Exploring the lived experiences of people with learning disabilities who are dying of cancer.<\/strong> <\/a>Nursing Times 106 (19), 15-18<\/p>\n\n\n\n

Hollins, S., Tuffrey-Wijne, I. (2010) End of life issues. In: Learning disability: a life cycle approach. 2nd edition.<\/strong><\/a> Edited by Grant G, Ramcharan P, Flynn M, Richardson M. Maidenhead: Open University Press, p. 459-473<\/p>\n\n\n\n

Wagemans, A., van Schrojenstein Lantman-de Valk, H., Tuffrey-Wijne, I., Widdershoven, G., Curfs, L. (2010) End of life decisions: an important theme in the care for people with intellectual disabilities. <\/strong><\/a>Journal of Intellectual Disability Research 54 (6), 516-524<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2009) ‘Am I a good girl?’ Dying people who have a learning disability.<\/a> <\/strong>End of Life Care 2009, 3(1):35-39<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2009), Bernal, J., Hubert, J., Butler, G., Hollins, S. (2009) People with learning disabilities who have cancer: an ethnographic study.<\/a> <\/strong>British Journal of General Practice 59 (564), 503-509<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2009): The preferred place of care for people who are dying<\/strong>.<\/a> Learning Disability Practice 2009, 12(6):16-21<\/p>\n\n\n\n

Bernal, J., Tuffrey-Wijne, I. (2008) Telling the truth \u2013 or not: disclosure and information for people with intellectual disabilities who have cancer<\/strong><\/a>. International Journal for Disability and Human Development 7 (4), 365-370<\/p>\n\n\n\n

Tuffrey-Wijne, I., McEnhill L. (2008): Communication difficulties and intellectual disability in end-of-life care.<\/strong> <\/a>International Journal of Palliative Nursing 14 (4), 192-197<\/p>\n\n\n\n

Tuffrey-Wijne, I., Whelton R, Curfs, L., Hollins, S. (2008): Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals in London. <\/strong><\/a>Palliative Medicine 22 (3),281-290<\/p>\n\n\n\n

Hogg, J., Tuffrey-Wijne, I. (2008) Cancer and intellectual disabilities: a review of some key contextual issues<\/strong>.<\/a> Journal of Applied Research in Intellectual Disabilities 21 (6), 509-518<\/p>\n\n\n\n

Tuffrey-Wijne, I., Curfs, L., Hollins, S. (2008) Access to palliative care services by people with learning disabilities: is there equity?<\/strong> <\/a>Advances in Mental Health and Learning Disabilities 2 (2), 42-48<\/p>\n\n\n\n

Cresswell, A., Tuffrey-Wijne, I. (2008) The come back kid: I had cancer, but I got through it.<\/a> <\/strong>British Journal of Learning Disabilities 36 (3), 152-156<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J., Hollins, S.: Doing research on people with learning disabilities, cancer and dying: ethics, possibilities and pitfalls<\/strong> <\/a>(2008). British Journal of Learning Disabilities 36 (3), 185-190<\/p>\n\n\n\n

Tuffrey-Wijne, I., Curfs, L., Hollins, S. (2008) Providing palliative care to people with intellectual disabilities who have cancer<\/strong>.<\/a> International Journal on Disability and Human Development 7 (4), 381-386<\/p>\n\n\n\n

Jones, A., Tuffrey-Wijne, I., Bernal, J., Butler, G., Hollins, S. (2007) Meeting the cancer information needs of people with learning disabilities: experiences of paid carers.<\/a> <\/strong>British Journal of Learning Disabilities 35 (1), 12-18<\/p>\n\n\n\n

Tuffrey-Wijne, I., Davies, J. (2007) T<\/a>his is my story: I’ve got cancer. <\/a>‘The Veronica Project’: an ethnographic study of the experiences of people with learning disabilities who have cancer.<\/strong> British Journal of Learning Disabilities 35 (1), 7-11<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J., Butler, G., Hollins, S., Curfs, L. (2007) Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision.<\/strong><\/a> Journal of Advanced Nursing 58 (1), 80-89<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hogg J, Curfs, L. (2007) End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources.<\/a> <\/strong>Journal of Applied Research in Intellectual Disability 20 (4), 331-344<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2007) Zorg voor mensen met een verstandelijke beperking: zijn palliatieve zorgverleners er klaar voor? (Care for people with intellectual disabilities: are palliative care professionals prepared?). Pallium 9 (4), 22-25<\/p>\n\n\n\n

Tuffrey-Wijne, I., McEnhill L, Curfs, L., Hollins, S. (2007) Palliative care provision for people with intellectual disabilities: interviews with specialist palliative care providers in London.<\/strong> <\/a>Palliative Medicine 21 (6), 493-499<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J., Jones A, Butler, G., Hollins, S. (2006) People with intellectual disabilities and their need for cancer information<\/strong>. <\/a>European Journal of Oncology Nursing 10 (2), 106-116<\/p>\n\n\n\n

Tuffrey-Wijne, I., Curfs, L. (2006) Redactioneel (Editorial). Nederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperking 32 (3), 141-142<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hollins, S., Curfs, L. (2006) Palliatieve zorg voor mensen met een verstandelijke beperking: het perspectief van palliatieve zorgverleners (Palliative care for people with intellectual disabilities: perspectives of palliative care professionals). Nederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperking 32 (3), 157-169<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hollins, S., Curfs, L. (2006) Zorg rond het levenseinde: het perspectief van mensen met een verstandelijke beperking. Een verkennende studie (End-of-life care: perspectives of people with intellectual disabilities. An exploratory study). Nederlands Tijdschrift voor de Zorg aan mensen met verstandelijke beperking 32 (3), 170-180<\/p>\n\n\n\n

Tuffrey-Wijne, I., Hollins, S., Curfs, L. (2005) Supporting patients who have intellectual disabilities: a survey investigating staff training needs. <\/strong><\/a>International Journal of Palliative Nursing 11 (4), 182-188<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J. (2005) Going to the theatre to talk about cancer. <\/strong>European Journal of Palliative Care 12 (3), 120-121<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2005) Pallliatieve zorg voor mensen met een verstandelijke beperking: “Waarom werd mij niets verteld?”<\/strong> (Palliative care for people with intellectual disabilities: “Why wasn’t I told anything?”). Pallium 7 (4), 10-13<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2003) The palliative care needs of people with intellectual disabilities: a literature review. <\/strong><\/a>Palliative Medicine 17 (1), 55-62<\/p>\n\n\n\n

Tuffrey-Wijne, I., Bernal, J. (2003) ‘Getting on’ with cancer. <\/strong>Learning Disability Practice 6 (5), 10-15<\/p>\n\n\n\n

Tuffrey-Wijne, I. (2002) The palliative care needs of people with intellectual disabilities: a case study. <\/strong><\/a>International Journal of Palliative Nursing 8 (5), 222-232<\/p>\n\n\n\n

Tuffrey-Wijne, I. (1998) Care of the terminally ill<\/a>. <\/strong>Learning Disability Practice 1 (1), 8-11.<\/p>\n\n\n\n

Tuffrey-Wijne, I. (1997) Bereavement in people with learning disabilities.<\/strong> European Journal of Palliative Care 4 (5), 170-173<\/p>\n\n\n\n

Tuffrey-Wijne, I. (1997) Palliative care and learning disabilities<\/a>. <\/strong>Nursing Times 93 (31), 50-51<\/p>\n","protected":false},"excerpt":{"rendered":"

Bruun A, Cresswell A, Jeffrey D, Jordan L, Keagan-Bull R, Giles J, Swindells S, Wilding M, Payne N, Allen G, Hughes R, Tilley E, Gibson S, Anderson-Kittow R, Tuffrey-Wijne I (2025) Getting it out there: Reflections on the process and impact of public engagement activities in a study on end-of-life care planning with people with […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":52,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-83","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/83","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=83"}],"version-history":[{"count":21,"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/83\/revisions"}],"predecessor-version":[{"id":1522,"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/83\/revisions\/1522"}],"up":[{"embeddable":true,"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/52"}],"wp:attachment":[{"href":"https:\/\/www.tuffrey-wijne.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=83"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}