PhD<\/strong>, Palliative Care for People with Intellectual Disabilities, Maastricht University, Netherlands <\/p>\n 2018 <\/strong>Professor\u00a0(Kingston University & St George’s, University of London) <\/p>\n 1991 Registered Nurse (General Nursing)<\/strong>, Nursing and Midwifery Council (PIN: 91J0032C) National Learning Disability & Autism Awards 2023<\/a><\/strong> (Winners, category: Employer of People with a Disability) 2024-2027 NIHR 159160<\/strong> (\u00a31,961,343) Developing effective service models for Adult Palliative and end of life care for People with a Learning disability (DAPPLE)<\/a> Principal Investigator<\/em>: Prof Irene Tuffrey-Wijne<\/p>\n 2024-2026 Marie Curie<\/strong> (\u00a342,560 led by Prof Irene Tuffrey-Wijne, as part of \u00a3148,606 total grant) Improving access to good end of life care: Recognising dying in people with learning disability who have conditions other than cancer or dementia. Principal Investigator<\/em>: Prof Stuart Todd (University of South Wales)<\/p>\n 2022-2024\u00a0NIHR202963 <\/strong>(\u00a3454,297) Co-designing a toolkit of approaches and resources for end-of-life care planning with people with learning disabilities within social care settings<\/a> Principal Investigator<\/em>: Prof Irene Tuffrey-Wijne<\/p>\n 2021-2026 NHS England\u00a0<\/strong>(\u00a3241,215 led by Prof Irene Tuffrey-Wijne, as part of larger tender) NHS England \u00bb Learning from lives and deaths \u2013 People with a learning disability and autistic people (LeDeR)<\/a>\u00a0Project Lead:\u00a0<\/em>Prof Andre Strydom (Kings College London)<\/p>\n 2020-2023\u00a0NIHR 129491 <\/strong>(233,607 led by Prof Irene Tuffrey-Wijne, as part of \u00a3869,911 total grant) Improving the support for older people with learning disabilities and behaviours that challenge others, family and professional carers, and end of life care planning for carers<\/a>\u00a0Principal Investigator:\u00a0<\/em>Prof Sara Ryan (Oxford University)<\/p>\n 2026-2018\u00a0\u00a0Bailey Thomas Charitable Fund\u00a0<\/strong>(\u00a361,064) How widespread is the practice of non-disclosure of expected death (of self or others) to adults with learning disabilities who live in supported living and residential settings in the United Kingdom? A comprehensive survey of support and care workers. Principal Investigator<\/em>: Prof Irene Tuffrey-Wijne<\/p>\n 2015-2019\u00a0NIHR 14\/21\/45\u00a0<\/strong>(\u00a38,277 held by Prof Irene Tuffrey-Wijne, as part of \u00a3582,227 total grant) Pay More Attention: A national mixed methods study to identify the barriers and facilitators to ensuring equal access to high quality hospital care and services for children and young people with and without learning disability and their families<\/a>\u00a0Principal Investigator:\u00a0<\/em>Dr Kate Oulton (Great Ormond Street Hospital)<\/p>\n 2015 South West London Academic, Health and Social Care System<\/strong> (\u00a39,987) Investigating the factors that affect the communication of death-related bad news to people with learning disabilities by social and health care staff: an interview study. Principal Investigator<\/em>: Prof Irene Tuffrey-Wijne<\/p>\n
\nBSc<\/strong>, Nursing Studies Palliative Care (First Class Honours), King’s College London, UK
\nPgDip<\/strong>, Diploma Higher Education in Nursing Studies Palliative Care (Distinction), King’s College London, UK
\nHBO-V<\/strong> (Registered Nurse) Gijsbreght Academie (College of Nursing), Amsterdam, Netherlands<\/p>\nProfessional experience<\/h2>\n
\n<\/strong>2014 – 2018<\/strong>\u00a0Associate Professor (Kingston University & St George’s, University of London)
\n2008 – present<\/strong> Honorary Senior Research Fellow\/Associate Professor\/Professor (Maastricht University, Gouvernor Kremers Centre, Netherlands)
\n2013 – 2014<\/strong> Senior Research Fellow (Kingston University & St George’s, University of London)
\n2010 – 2013<\/strong> Senior Research Fellow (St George’s University of London)
\n2004 – 2010<\/strong> Research Fellow (St George’s, University of London)
\n2001 – 2004<\/strong> Research and Development Nurse (St George’s, University of London)
\n1998 – 2001<\/strong> Palliative Care Nurse Specialist (Trinity Hospice, London)
\n1996 – 1998<\/strong> Ward Sister (Trinity Hospice, London)
\n1993 – 1996<\/strong> Staff Nurse (Trinity Hospice, London)
\n1988 – 1993<\/strong> Residential Care Home Manager (L’Arche Community for People with Intellectual Disabilities, London)
\n1987 – 1988<\/strong> Various agency nursing posts (Netherlands)
\n1985 – 1987<\/strong> Residential Care Support Worker (L’Arche Community, London)<\/p>\n<\/div>\nProfessional registration and membership<\/h2>\n
\n1993 Registered Nurse (Learning Disability Nursing)<\/strong>, Nursing and Midwifery Council (PIN: 91J0032C)
\n1981-2015: Nursing Register, the Netherlands (now expired)
\n<\/em><\/strong>Member, European Association of Palliative Care<\/strong>
\nFellow, European Academy of Nursing Science<\/strong>
\nMember \/ Trustee, Palliative Care for People with Learning Disabilities Network<\/strong><\/p>\nAwards<\/h2>\n
\nKingston University People Awards 2023<\/strong><\/a> (Winners, Inclusive Values)
\nNational Diversity Awards 2021<\/strong><\/a> (Shortlisted for work with the PCPLD Network. Category: Community Organisation Award for Disability)
\nUniversity Alliance Award 2021<\/strong><\/a> (Joint Winners, Innovation Award Category)
\nPalliative Care Nursing Pioneer 2020<\/a>,\u00a0<\/strong>St Christopher’s Hospice
\nPostdoctoral Research Award 2017<\/strong><\/a>, European Association of Palliative Care
\nRCN Research Society Akinsanya Award 2009<\/strong> (Special Commendation) For innovation in doctoral nursing research
\n<\/em>Best Poster Award<\/strong>, 9th Conference for Clinical Ethic Committees, Oxford, 2009
\nBest Poster Prize<\/strong>, European Congress of the International Association for the Scientific Study of Intellectual Disabilities, 2006
\nFirst Prize<\/strong>, Macmillan Cancer Relief\/International Journal of Palliative Nursing Awards 2005, \u2018Educationalist of the year\u2019<\/p>\nResearch grants and funding<\/h2>\n