EAPC Reference Group on Intellectual Disability (2012 – ongoing)

Website: see here

The European Assocation of Palliative Care (EAPC) hosts and supports this international group of researchers and practitioners, focused on the challenges of meeting the palliative care needs of people with intellectual disabilities across Europe and beyond.

Irene has been chair (and later co-chair) of the group since it was set up in 2012.

The group is currently analysing the responses to the PEPIC-19 survey, an international survey about the care and support given to people with Intellectual Disabilities at the end of their lives, both before and during the Covid-19 pandemic.