{"id":994,"date":"2021-08-12T18:35:24","date_gmt":"2021-08-12T17:35:24","guid":{"rendered":"http:\/\/www.tuffrey-wijne.com\/?page_id=994"},"modified":"2025-02-12T18:26:16","modified_gmt":"2025-02-12T18:26:16","slug":"leder-programme","status":"publish","type":"page","link":"http:\/\/www.tuffrey-wijne.com\/?page_id=994","title":{"rendered":"Staying Alive and Well (LeDeR Programme) (2021 &#8211; ongoing)"},"content":{"rendered":"\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"2022 LeDeR report foreword from the Staying Alive and Well group\" width=\"660\" height=\"371\" src=\"https:\/\/www.youtube.com\/embed\/_ao_etBdtMw?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><figcaption class=\"wp-element-caption\">Watch this introduction to the 2022 LeDeR report, by the Staying Alive and Well Group <\/figcaption><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\"><a href=\"https:\/\/www.kcl.ac.uk\/research\/leder\">CLICK HERE for the 2022 LeDeR <\/a><a href=\"https:\/\/www.kcl.ac.uk\/research\/leder\" target=\"_blank\" rel=\"noreferrer noopener\">reports<\/a> <strong>(Published November 2023)<\/strong><\/h3>\n\n\n<div class=\"wp-block-image wp-image-1038 size-medium\">\n<figure class=\"aligncenter\"><img loading=\"lazy\" decoding=\"async\" width=\"211\" height=\"300\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo-211x300.jpg\" alt=\"\" class=\"wp-image-1038\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo-211x300.jpg 211w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo-768x1093.jpg 768w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo-719x1024.jpg 719w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo-619x881.jpg 619w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-and-Well-Logo.jpg 1362w\" sizes=\"auto, (max-width: 211px) 100vw, 211px\" \/><figcaption class=\"wp-element-caption\">Logo designed by Darren Barnes<\/figcaption><\/figure>\n<\/div>\n\n\n<h2 class=\"wp-block-heading\"><a href=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Easy-read-information-about-the-STAYING-ALIVE-AND-WELL-group-1.pdf\">CLICK HERE&nbsp;<\/a><strong>for Easy Read info about <span style=\"color: #0000ff;\">Staying Alive and Well<\/span>.<\/strong><\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">What is the Staying Alive and Well group?<\/h3>\n\n\n\n<p><a href=\"https:\/\/www.kingston.ac.uk\/news\/article\/2510\/10-jun-2021-kingston-university-and-st-georges-university-of-london-to-support-project-to-tackle-health-inequalities\/\">My team at Kingston University<\/a> is part of a Consortium led by <a href=\"https:\/\/www.kcl.ac.uk\/news\/kings-to-lead-new-collaboration-to-reduce-health-inequalities-for-people-with-learning-disabilities-and-autistic-people\">King&#8217;s College London<\/a>. We are commissioned by NHS England to support the <a href=\"https:\/\/www.england.nhs.uk\/learning-disabilities\/learning-disability-and-autism-programme-data-and-information\/\">National Learning Disability and Autism Programme <\/a>to reduce inequalities and premature mortality among learning disabled and autistic people. This involved analysing the data of the <a href=\"https:\/\/www.england.nhs.uk\/learning-disabilities\/improving-health\/mortality-review\/\">Learning from Deaths of People with a Learning Disability (LeDeR) programme<\/a>, which reviews deaths of people with learning disabilities, looks at their life and the health and social care services they received.<\/p>\n\n\n\n<p>At my end, we use our skills in co-research and co-production to lead the Co-Production Partnership, working the <a href=\"https:\/\/www.learningdisabilities.org.uk\/\">Foundation of People with Learning Disabilities<\/a>, the <a href=\"https:\/\/www.slam.nhs.uk\/about-us\/training-and-development\/learning-disabilities-training-estia-centre\/\">Estia Centre<\/a> and <a href=\"https:\/\/www.pathwaysassociates.co.uk\/\">Pathways Associates<\/a>.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter\"><img loading=\"lazy\" decoding=\"async\" width=\"441\" height=\"251\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-Group-Nov2021.jpg\" alt=\"\" class=\"wp-image-1041\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-Group-Nov2021.jpg 441w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Staying-Alive-Group-Nov2021-300x171.jpg 300w\" sizes=\"auto, (max-width: 441px) 100vw, 441px\" \/><\/figure>\n<\/div>\n\n\n<p><\/p>\n\n\n\n<p>At the heart of the partnership is an expert core group of ten people with learning disabilities (and people who support them), who meet together on Zoom once a month. Their role includes identifying areas that need further attention, harnessing the views of other people with learning disabilities on pertinent issues, contributing to the identification of recommendations, and communicating the LeDeR findings to a wider audience including people with learning disabilities.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Accessible versions of the LeDeR reports<\/strong><\/h3>\n\n\n\n<p>This is our biggest job. In 2022, we published our first accessible version of the Annual LeDeR Report. We produced a video. <a href=\"http:\/\/www.tuffrey-wijne.com\/?p=1087\" target=\"_blank\" rel=\"noreferrer noopener\">Read here<\/a> how we decided on this format.<\/p>\n\n\n\n<p><a href=\"https:\/\/www.kcl.ac.uk\/research\/leder\" target=\"_blank\" rel=\"noreferrer noopener\">CLICK HERE<\/a> for links to all the accessible versions of the reports (as well as the full reports)<\/p>\n\n\n\n<p><strong>Here are two videos the group produced in 2023:<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"How LeDeR works\" width=\"660\" height=\"371\" src=\"https:\/\/www.youtube.com\/embed\/Dwg6hl41dR8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><figcaption class=\"wp-element-caption\">How LeDeR works<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Leder 2022 accessible report\" width=\"660\" height=\"371\" src=\"https:\/\/www.youtube.com\/embed\/ZW31o2jOEP8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><figcaption class=\"wp-element-caption\">Accessible version of the 2022 Annual LeDeR report<\/figcaption><\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">Art competition: design our logo<\/h3>\n\n\n\n<h3 class=\"wp-block-heading\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-large wp-image-1042\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Art-gallery-Feb2022-1024x373.jpg\" alt=\"\" width=\"660\" height=\"240\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Art-gallery-Feb2022-1024x373.jpg 1024w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Art-gallery-Feb2022-300x109.jpg 300w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Art-gallery-Feb2022-768x279.jpg 768w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Art-gallery-Feb2022-619x225.jpg 619w\" sizes=\"auto, (max-width: 660px) 100vw, 660px\" \/><\/h3>\n\n\n\n<p>At the start of 2022, we held an art competition for people with learning disabilities and autistic people across England. We received lots of wonderful entries. The winning logo (at the top of this page) was by&nbsp;<strong>Darren Barnes<\/strong>. Here are some of the runners-up!<\/p>\n\n\n<div class=\"wp-block-image wp-image-1043 size-medium\">\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"268\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited-300x268.jpg\" alt=\"\" class=\"wp-image-1043\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited-300x268.jpg 300w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited-768x686.jpg 768w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited-1024x914.jpg 1024w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited-619x553.jpg 619w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Peter-Allum-edited.jpg 1277w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption class=\"wp-element-caption\">Peter Allum<\/figcaption><\/figure>\n<\/div>\n\n<div class=\"wp-block-image wp-image-1046 size-medium\">\n<figure class=\"alignright\"><img loading=\"lazy\" decoding=\"async\" width=\"218\" height=\"300\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services-218x300.jpg\" alt=\"\" class=\"wp-image-1046\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services-218x300.jpg 218w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services-768x1058.jpg 768w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services-744x1024.jpg 744w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services-619x852.jpg 619w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Tonbridge-Tonbridge-Wells-Day-Services.jpg 1276w\" sizes=\"auto, (max-width: 218px) 100vw, 218px\" \/><figcaption class=\"wp-element-caption\">Tonbridge &amp; Tonbridge Wells Day Services<\/figcaption><\/figure>\n<\/div>\n\n<div class=\"wp-block-image wp-image-1044 size-medium\">\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"295\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington-300x295.jpg\" alt=\"\" class=\"wp-image-1044\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington-300x295.jpg 300w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington-768x755.jpg 768w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington-1024x1007.jpg 1024w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington-619x608.jpg 619w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Louise-Darlington.jpg 1405w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption class=\"wp-element-caption\">Louise Darlington<\/figcaption><\/figure>\n<\/div>\n\n<div class=\"wp-block-image wp-image-1045 size-medium\">\n<figure class=\"alignleft\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"51\" src=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Stuart-Hand-300x51.jpg\" alt=\"\" class=\"wp-image-1045\" srcset=\"http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Stuart-Hand-300x51.jpg 300w, http:\/\/www.tuffrey-wijne.com\/wp-content\/uploads\/2021\/08\/Stuart-Hand.jpg 451w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption class=\"wp-element-caption\">Stuart Hand<\/figcaption><\/figure>\n<\/div>\n\n\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><\/figure><div class=\"wp-block-media-text__content\">\n<p><\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><\/figure><div class=\"wp-block-media-text__content\">\n<p><\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><\/figure><div class=\"wp-block-media-text__content\">\n<p><\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text alignwide is-stacked-on-mobile\"><figure class=\"wp-block-media-text__media\"><\/figure><div class=\"wp-block-media-text__content\">\n<p><\/p>\n<\/div><\/div>\n\n\n\n\n\n\n\n\n\n\n\n\n","protected":false},"excerpt":{"rendered":"<p>CLICK HERE for the 2022 LeDeR reports (Published November 2023) CLICK HERE&nbsp;for Easy Read info about Staying Alive and Well. What is the Staying Alive and Well group? My team at Kingston University is part of a Consortium led by King&#8217;s College London. We are commissioned by NHS England to support the National Learning Disability [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":51,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-994","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/994","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=994"}],"version-history":[{"count":19,"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/994\/revisions"}],"predecessor-version":[{"id":1458,"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/994\/revisions\/1458"}],"up":[{"embeddable":true,"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=\/wp\/v2\/pages\/51"}],"wp:attachment":[{"href":"http:\/\/www.tuffrey-wijne.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=994"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}